Privacy Policy
Autism Ally Foundation
Website: www.autismallyfoundation.com
Effective Date: 05.22.2026
Last Updated: 05.22.2026
Autism Ally Foundation respects the privacy of every family, donor, volunteer, sponsor, partner, caregiver, and visitor who interacts with our organization, website, programs, events, and services. This Privacy Policy explains how we collect, use, store, protect, and share information through our website, online forms, event registrations, donation pages, volunteer applications, resource requests, email communications, social media interactions, and other foundation activities.
By using our website, submitting information to Autism Ally Foundation, registering for an event, making a donation, signing up to volunteer, requesting resources, or communicating with us, you agree to the practices described in this Privacy Policy.
1. Who We Are
Autism Ally Foundation is a nonprofit organization dedicated to autism awareness, inclusive community programming, family support, resource connection, and safe event experiences for children, individuals, and families impacted by autism and related needs.
Our website may be used to:
Register for events;
Collect donations and sponsorships;
Share autism-related resources;
Accept volunteer applications;
Collect vendor, sponsor, donor, and partner information;
Provide event updates and community announcements;
Promote programs, fundraising activities, and foundation initiatives;
Collect family accommodation requests and safety-related event information.
Because we may serve children, families, caregivers, and individuals with disabilities, we take privacy seriously and aim to collect only the information necessary to safely and effectively operate our programs.
2. Information We May Collect
Autism Ally Foundation may collect personal information directly from you when you voluntarily provide it through our website, forms, event registration pages, donation platforms, email, text messages, phone calls, paper forms, social media, or in-person sign-ups.
The types of information we may collect include:
Personal Contact Information
Name;
Email address;
Phone number;
Mailing address;
City, state, and ZIP code;
Preferred method of contact.
Event Registration Information
Names of attendees;
Number of guests attending;
Parent, guardian, or caregiver name;
Child or participant name, when needed for registration;
Age range or age of participant, when needed for event planning;
Emergency contact information;
Preferred time slot;
Accessibility or accommodation requests;
Sensory needs;
Dietary restrictions or food allergy information;
Notes needed to help us provide a safer event experience.
Family and Resource Request Information
When families contact us for help, we may collect information related to the type of support being requested, such as:
General autism-related resource needs;
Service or referral needs;
School, therapy, respite, personal care, or community resource questions;
Preferred contact information;
Details you choose to share about your family’s situation.
We ask families not to submit unnecessary medical records, diagnosis paperwork, insurance information, or highly sensitive documents through general website forms unless specifically requested through a secure process.
Donation and Payment Information
When you donate, purchase event tickets, sponsor an event, or pay for a fundraising item, we may collect:
Donor name;
Billing address;
Email address;
Phone number;
Donation amount;
Donation date;
Sponsorship level;
Receipt and transaction information;
Information required for tax receipt or donation acknowledgment purposes.
Payment card or banking details may be processed by third-party payment processors. Autism Ally Foundation does not intend to store full credit card numbers or payment card security codes on its own website.
Volunteer Information
If you complete a volunteer form, we may collect:
Name;
Contact information;
Availability;
Volunteer interests;
Skills or experience;
Preferred event or program area;
Employer-supported volunteer program information, if applicable;
Blackbaud, Benevity, corporate volunteer, or employer matching details, if voluntarily provided;
Emergency contact information;
Background screening or training completion information, if required for a specific role.
Sponsor, Vendor, and Partner Information
We may collect:
Business or organization name;
Contact person;
Email address;
Phone number;
Website;
Logo or brand files;
Sponsorship level;
Vendor/service details;
Donation or in-kind contribution details;
Tax receipt information;
Event participation information.
Photos, Videos, and Media
At Autism Ally Foundation events, photos and videos may be taken for documentation, promotion, fundraising, social media, website content, grant reporting, sponsor recognition, and community awareness.
When possible, we may use media consent forms, signage, registration notices, wristbands, check-in designations, or other tools to help identify whether a person may be photographed or recorded.
Parents and guardians should notify Autism Ally Foundation in writing if they do not want their child photographed or recorded at an event.
Website and Technical Information
When you visit our website, certain information may be collected automatically, including:
IP address;
Browser type;
Device type;
Pages visited;
Date and time of visit;
Referring website;
General location information based on browser or device settings;
Cookies and similar tracking technologies;
Website performance and analytics data.
3. How We Use Information
Autism Ally Foundation may use collected information to:
Operate and improve our website;
Process event registrations;
Manage check-in, attendance, time slots, and event capacity;
Provide safer and more inclusive event experiences;
Prepare sensory supports, food counts, supplies, accommodations, and volunteer coverage;
Respond to inquiries and resource requests;
Communicate with families, donors, volunteers, sponsors, vendors, and partners;
Send confirmations, reminders, updates, receipts, and follow-up messages;
Process donations, sponsorships, ticket purchases, and fundraising transactions;
Provide donation receipts and tax acknowledgment letters;
Coordinate volunteer roles and training;
Document event impact and community reach;
Share foundation news, campaigns, programs, and fundraising opportunities;
Recognize donors, sponsors, volunteers, and community partners, when appropriate;
Maintain internal records;
Improve programs, outreach, and services;
Comply with legal, tax, nonprofit, accounting, insurance, grant, and reporting obligations;
Protect the safety, security, and integrity of our events, website, participants, staff, volunteers, and community.
4. Children’s Privacy
Autism Ally Foundation serves families and children, but our website is intended to be used by adults, parents, legal guardians, caregivers, donors, volunteers, sponsors, and community members.
We do not knowingly request that children under the age of 13 submit personal information directly through our website without parent or guardian involvement. If information about a child is submitted through an event registration, accommodation form, resource request, or similar process, it should be submitted by a parent, legal guardian, caregiver, or authorized adult.
Information about children may be collected when necessary to:
Register a child for an event;
Plan age-appropriate activities;
Provide sensory-friendly support;
Prepare accommodations;
Address allergies or safety needs;
Support check-in and event operations;
Communicate with the parent or guardian.
We do not sell children’s personal information. We do not use children’s personal information for behavioral advertising. We do not intentionally publish a child’s full name, address, medical details, or private family information on our website or social media without appropriate permission.
Parents or guardians may contact us to request that information about their child be reviewed, corrected, removed, or no longer used, subject to legal, safety, accounting, or operational recordkeeping needs.
5. Sensitive Information
Because Autism Ally Foundation may receive information related to disability, autism needs, accommodations, allergies, sensory needs, family challenges, or resource needs, we treat sensitive information with additional care.
We ask that you only provide sensitive information that is necessary for the purpose of your request or participation.
Sensitive information may be used only for appropriate foundation purposes, such as:
Preparing accommodations;
Supporting safety at an event;
Helping a family connect with resources;
Communicating with the parent, guardian, or caregiver;
Documenting internal program needs;
Meeting safety, legal, or reporting requirements.
Autism Ally Foundation does not provide medical care, clinical diagnosis, legal advice, or emergency services through its website. Information submitted through the website should not be used as a substitute for professional medical, clinical, legal, or emergency assistance.
6. Donations and Donor Privacy
Autism Ally Foundation values donor privacy. We may collect and maintain donor information for donation processing, accounting, tax receipts, acknowledgment letters, donor recognition, sponsorship records, grant reporting, and nonprofit compliance.
We do not sell donor names, donor contact information, or donor lists.
We may publicly recognize donors, sponsors, or partners by name, logo, sponsorship level, or contribution category unless the donor requests anonymity. Donors who wish to remain anonymous should notify Autism Ally Foundation at the time of donation or by contacting us directly.
Donation information may be shared with payment processors, accounting providers, tax professionals, donor management systems, or other service providers only as needed to process, record, acknowledge, or report donations.
Autism Ally Foundation may be required to maintain certain donation records for legal, tax, grant, accounting, or audit purposes.
7. Event Registration and Attendance Information
Information collected during event registration may be used to manage:
Capacity limits;
Time slots;
Guest counts;
Food planning;
Activity planning;
Sensory-friendly support;
Volunteer assignments;
Safety planning;
Emergency contact needs;
Accommodation requests;
Post-event follow-up;
Grant, sponsor, and impact reporting.
Autism Ally Foundation may use attendance numbers, general demographic information, and non-identifying event data to report community impact. For example, we may report the number of families served, supplies distributed, meals provided, volunteers involved, or funds raised.
We will not intentionally publish private family details, medical information, disability details, or a child’s personal identifying information without permission.
8. Photos, Videos, Testimonials, and Public Content
Autism Ally Foundation may use photos, videos, testimonials, event quotes, and public content to promote the mission of the foundation, document community impact, thank supporters, and share program updates.
This may include use on:
Our website;
Social media pages;
Flyers and promotional materials;
Event recaps;
Sponsor reports;
Grant applications;
Email newsletters;
Fundraising campaigns;
Printed materials.
Parents, guardians, attendees, donors, volunteers, and guests who do not want themselves or their children photographed or recorded should notify Autism Ally Foundation before or during the event.
If you submit photos, videos, comments, testimonials, or tagged social media posts to Autism Ally Foundation, you may be giving us permission to share, repost, or use that content for foundation-related purposes unless you clearly state otherwise.
Autism Ally Foundation reserves the right to remove or decline to use any media, testimonial, or content at its discretion.
9. Social Media and Public Platforms
Autism Ally Foundation may use platforms such as Facebook, Instagram, TikTok, YouTube, LinkedIn, or other social media channels to communicate with the public.
Please remember that information you post publicly, tag us in, comment on, or share on social media may be visible to others. Autism Ally Foundation is not responsible for the privacy practices of social media platforms or for information you choose to make public.
If a contest, fundraiser, voting activity, giveaway, or community challenge requires posting or tagging Autism Ally Foundation, participants should avoid sharing private medical details, addresses, phone numbers, or sensitive family information in public posts.
10. Cookies, Analytics, and Website Tracking
Our website may use cookies, tracking tools, pixels, analytics services, or similar technologies to help us understand how visitors use our website and improve the user experience.
These tools may collect information such as:
Pages visited;
Time spent on the website;
Device type;
Browser type;
General location;
Referral source;
Click activity;
Website performance data.
Cookies may also help with website functionality, forms, security, event registration, donation processing, and user experience.
You can adjust your browser settings to block or delete cookies. However, some website features may not work properly if cookies are disabled.
11. Third-Party Services
Autism Ally Foundation may use third-party platforms and service providers to operate our website, process donations, manage registrations, send emails, host forms, manage events, collect volunteer information, process payments, provide analytics, or support communications.
These third parties may include:
Website hosting providers;
Odoo or other website/event platforms;
Payment processors;
Donation platforms;
Email marketing tools;
Text messaging tools;
Social media platforms;
Volunteer management platforms;
Employer volunteer or matching gift platforms;
Accounting or bookkeeping systems;
Cloud storage providers;
Analytics providers;
Ticketing or event registration tools.
These third parties may collect and process information according to their own privacy policies and terms. Autism Ally Foundation is not responsible for the privacy practices of third-party websites, platforms, or services that we do not control.
We encourage users to review the privacy policies of any third-party services they use when interacting with our website or foundation.
12. How We Share Information
Autism Ally Foundation may share information only when appropriate and necessary, including with:
Staff, board members, contractors, or volunteers who need the information to perform foundation work;
Event team members who need information for check-in, accommodations, food planning, safety, or support;
Payment processors and donation platforms;
Website, email, registration, or technology service providers;
Accounting, tax, legal, or compliance professionals;
Sponsors or grantors, using non-identifying or summary information when possible;
Emergency contacts, medical personnel, or appropriate authorities if there is a safety concern;
Law enforcement, government agencies, or courts when legally required;
Other parties with your consent.
We do not sell personal information.
We do not trade donor lists.
We do not share private family or child information for unrelated marketing purposes.
13. Email, Text, and Communication Consent
By submitting your phone number, email address, or contact information, you may receive communications from Autism Ally Foundation related to:
Event registration;
Volunteer opportunities;
Donation receipts;
Program updates;
Resource requests;
Foundation announcements;
Fundraising campaigns;
Sponsorship opportunities;
Community alerts;
Follow-up messages.
You may unsubscribe from marketing emails by using the unsubscribe link, if available, or by contacting us directly.
You may request to stop receiving text messages by replying “STOP” or contacting us directly. Standard message and data rates may apply depending on your mobile carrier.
Transactional or important communications, such as donation receipts, event confirmations, safety notices, or volunteer instructions, may still be sent when necessary.
14. Data Security
Autism Ally Foundation takes reasonable steps to protect personal information from unauthorized access, misuse, loss, disclosure, alteration, or destruction.
Security measures may include:
Password-protected systems;
Limited access to records;
Secure payment processors;
Internal access controls;
Staff and volunteer confidentiality expectations;
Secure storage of important records;
Review of third-party tools used for foundation operations.
However, no website, email system, online form, or electronic storage method is completely secure. We cannot guarantee absolute security of information transmitted online.
Please avoid sending highly sensitive information through unsecured email, public social media messages, or general website forms.
15. Data Retention
Autism Ally Foundation keeps information only as long as reasonably necessary for the purpose it was collected, unless a longer retention period is required or allowed by law.
We may retain information for:
Event records;
Donation and tax records;
Accounting and audit purposes;
Grant reporting;
Volunteer records;
Sponsor records;
Legal compliance;
Safety documentation;
Dispute resolution;
Program history and impact tracking.
When information is no longer needed, we may delete, archive, anonymize, or securely dispose of it.
16. Your Choices and Privacy Requests
You may contact Autism Ally Foundation to request that we:
Update your contact information;
Correct inaccurate information;
Remove you from email or text lists;
Review information you submitted;
Delete certain information, when legally and operationally possible;
Remove a photo or video from our website or social media, when reasonably possible;
Limit future use of your information;
Mark a donor gift as anonymous;
Update communication preferences.
Some information may need to be retained for legal, tax, accounting, donation, safety, event, or compliance reasons.
17. Links to Other Websites
Our website may include links to other websites, organizations, sponsors, vendors, resource providers, donation platforms, government agencies, or social media pages.
Autism Ally Foundation is not responsible for the privacy practices, content, security, or policies of outside websites. Visiting third-party links is at your own discretion.
18. Accessibility and Inclusive Use
Autism Ally Foundation aims to make its website and communications accessible and inclusive. If you need help accessing information, completing a form, registering for an event, requesting accommodations, or understanding this Privacy Policy, please contact us.
We may provide reasonable assistance when possible.
19. No Medical, Legal, or Emergency Advice
Information provided through Autism Ally Foundation’s website is for general community, resource, awareness, and support purposes.
Our website does not provide:
Medical diagnosis;
Clinical treatment;
Legal advice;
Emergency services;
Crisis intervention;
Guaranteed eligibility for services;
Professional healthcare guidance.
If you are experiencing an emergency, call 911 or contact appropriate emergency services immediately.
If you need medical, therapeutic, educational, legal, or disability-related guidance, please consult a qualified professional.
20. Changes to This Privacy Policy
Autism Ally Foundation may update this Privacy Policy from time to time. Updates may reflect changes in our programs, website tools, privacy practices, legal requirements, donation systems, event operations, or organizational needs.
When updates are made, we will revise the “Last Updated” date at the top of this policy.
Continued use of our website after updates are posted means you accept the revised Privacy Policy.
21. Contact Us
For privacy questions, corrections, opt-out requests, media concerns, donor privacy requests, or child-related privacy concerns, please contact:
Autism Ally Foundation
Website: www.autismallyfoundation.com
Email: info@autismallyfoundation.com
Phone: 877.273.4376
Mailing Address: 1515 N. Warson Rd. Ste 256 St. Louis Mo. 63132